Em at 15 Months

Another month has gone by, and once again, the month was filled with many firsts and miracles. As I reflect upon the events of the last month I'm reminded of the words the words in Joshua 1:5 "There shall not any man be able to stand before thee all the days of thy life: as I was with Moses, so I will be with thee: I will not fail thee nor forsake thee."


Being a parent of a special needs child is hard. I've fully embraced and accepted every minute of it, and it helps that Em is so stinkin cute and I find myself just wanting to squish my cheeks into hers on a daily basis. But it's hard when you think about all the unknowns. Will my child speak? Will she talk? When will she sit, crawl, jump, pivot, roll, etc... 

It's hard not having answers to questions that any parent would ask themselves if they were in the same situation. Luckily we have a great therapist who can give us estimates, but seeing Em's "sitting by Halloween", deadline come and go without having the milestone accomplished was hard. But as I sat and had a chance to reflect on where we started from, and where we are now, We've seen SO MUCH PROGRESS.

When we started physical therapy, Em couldn't be carried around on my hip without flopping over. This is now the main position in which I carry her all day long. Em couldn't roll from her back to her belly and now she can do that and hold herself up on her arms enough to clear most of her belly off of the floor. There was no sign of mobility just six months ago at the beginning of the PT journey and now she can roll across a room and even push herself backwards with her arms.

When we got her wheelchair a few months back, she couldn't even sit in it without falling over. Just last week she moved herself from the living room to the dinning room and I never thought I could possibly feel more joy than I had in that moment. 

While we're not seeing the progress we thought we would have seen by now, we're seeing progress. I know that the small victories that we've had are the building blocks to big things ahead. The fact that she has been able to figure out and navigate her wheelchair shows an incredible amount of intelligence, and the capacity to be intelligent and continue to learn. 

Sometimes this journey feels long, and hard. It's a burden, and a trial, and a miracle, and a joy that we get to endure everyday for the rest of our lives. While that sometimes seems daunting when we don't know what the end result will be, we know the Lord is there. He has been there, and will continue to be there and bear us up as we continue to persevere and push on. 

6 comments

  1. Cherish the small victories. You and Em got this!

    xo Jen
    Skirt The Rules

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  2. Cuteness!! :) If she's figuring out her wheelchair at 15 months, she's amazing!!

    This past June, my 8-year-old son broke his femur and had emergency surgery and was wheelchair bound all summer and into the school year. He learned a great deal about being "invisible" to others. He noticed that most adults acted as if they didn't see him (perhaps they didn't want to be rude and ask), and the kids would stare and not talk to him. On the flip side, he also experienced amazing kindness from those who did notice him and talk to him. He also had to work harder to get people to talk to him.

    It made a big impact on his world view and his view of himself. He now makes a conscious effort to approach and communicate with children who have visible disabilities and has a greater appreciation for just how powerful they are. He told me that kids who are disabled are superheroes - that they have to be powerful because life is just a bit tougher on them. I couldn't agree more.

    Here's the story on my husband's blog: http://liayf.blogspot.com/2015/08/they-saw-sign-it-opened-up-their-eyes.html

    p.s. I came here from a link on Design Mom. You have a great blog!!

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  3. You are an admirable person,
    your love for your family is amazing...
    Have a nice day,
    Emma
    www.emmalovesfashion.com

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  4. You are an amazing mom! I can't say I know what it's like to be a mom of a special needs child, but my cousin has special needs and I have grown up watching everything her mom and siblings have done for her and I definitely admire you and any parent of a special needs child. My cousin developed normally until about the age of 4 and then slowly lost her ability to talk, walk, etc. She was given a life expectancy of 20 and she is now 27. I'll be keeping Em in my prayers that she continues to reach those milestones. I don't blame you for wanting to squish those little cheeks! She's a cutie!

    http://elementsofellis.com/

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  5. Wow! You and Em are amazing. So strong and positive. She is very lucky to have you.

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